Soft Market Testing - Primary Ciliary Dyskinesia Management Service (Adults)

Tender description

External Reference TED Reference: 2019/S 021-045882 NHS England Specialised Commissioning is planning to commission centres to provide a Primary Ciliary Dyskinesia Management Service (Adults) and is inviting all suitably qualified providers to complete a Soft Market Testing Questionnaire. Interested parties should respond to this notice as the responses to the questionnaire will be used to support the identification of the future commissioning route for the new service. The service aims to: 1) Ensure that all PCD adult patients, wherever they live, have access to and are managed according to optimal standards of care, by ensuring: a) Ensure that all PCD adult patients have an annual review by a specialist PCD MDT consisting of a PCD specialist consultant, physiotherapist, nurse specialist and ENT specialist with access to a dietician and psychologist as needed. b) Ensure that all PCD adult patients have access to appropriate home and inpatient antibiotic services c) Ensure that care and management of patients with PCD is coordinated so that patients receive appropriate respiratory, ENT, cardiac, obstetric and physiotherapy care, fertility advice, palliative care and care for other conditions associated with PCD. d) Ensure that patients/families and other health professionals are educated on the implications and management of PCD. 2) Raise awareness in the Adult Respiratory community about the diagnosis of PCD to ensure that these patients are transferred from bronchiectasis and other clinics to the PCD specialist service to monitor their condition and limit disease progression. 3) Reduce the morbidity and mortality related to PCD, as well as the economic burden, associated with late diagnosis and poorly managed disease. 4) Enter patients into a national database. 5) Collaborate with expert patient groups, patients, families and other stakeholders to monitor patient experience to drive service improvement. To complete the soft market questionnaire and access any supporting documents please: (a) Register on the procurement portal website EU Supply using the following link https://uk.eu-supply.com/login.asp?B=agcsu. The EU Supply project reference number is Quote/tender 34277 - NHS England 2019 - Soft Market Testing - Primary Ciliary Dyskinesia Management Service (Adults). (b) Complete and submit the soft market testing questionnaire Quote/tender 34277 by no later than 26 Feb 2019 at 5pm. More information about the service can be found on https://www.england.nhs.uk/publication/adult-primary-ciliary-dyskinesia-service-specification/. This document contains the service specification. Note that the value stated is an indicative value for a contract with duration of 3 (three) years. Both contract value and contract duration are indicative. The indicative value is based on an analysis of provider costs to ensure that all adult PCD patients have access to and are managed according to optimal standards of care as described in the service specification.